PWN4PWN has opened a narcolepsy registry in collaboration with CoRDS (Coordination of Uncommon Ailments at Sanford) to attach as many sufferers and researchers as attainable to advance remedy for narcolepsy. The registry is free for sufferers to affix and for researchers to entry.
Taking part on this registry and offering info associated to quite a lot of matters, corresponding to work, transport, and parenthood, will enable researchers to have easy accessibility to helpful information on people with narcolepsy as a way to develop higher research extra shortly in addition to extra simply discover members for these research. PWN4PWN also can use this info to raised perceive narcolepsy, direct analysis initiatives, and inform affected person help wants.
To study extra details about the registry and CoRDS, go to: https://www.pwn4pwn.org/narcolepsy-register/
PWN4PWN additionally has a personal Facebook group the place individuals can speak about experiences with narcolepsy and idiopathic hypersomnia and obtain help. For extra info on PWN4PWN, go to: https://www.pwn4pwn.org/
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